Living with my daughter.
Nice to meet you! Thank you for visiting to my blog😊
I have a daughter with an intellectual disability + autism spectrum + ADHD + sleep disorder.
She doesn’t have much of a temper tantrum…
But she’s ALWAYS talking, moving, singing, and eat well! (often too much😅).
I think her style is a kind of “noisy", like “It’s a bit loud…be quiet…"
By the time she goes to bed and sleep, my “power gauge" is at zero or even negative everyday😱😭
Because she doesn’t sleep at normal and healthy time.
Definitely she’s supposed to be sleepy!…but she always refuses to sleep.
But somehow (?) I’m doing it.
Her behaviour tells me “Let’s do something good for other people."
Raising her is not always a simple task.
Reading some typical parenting books doesn’t work for me😮
For example, toilet training (potty training).
Even when I said “I’ll give you an Anpanman sticker if you can go to the bathroom" like in some typical parenting books, it was hard for her to understand what it meant because her language developing was slow.
When I was in my twenties, I took Hoikusi Kokka Shiken (a nursery exam) and got a certification for Hoikushi (a nursery teacher), so I knew a little bit about a developmental disability.
Therefore my daughter was about at a year and a half, I somehow thought, “Maybe she has it…🤔?"
Now she’s in Ryoiku (a therapy) and is able to do more things and speak more words.
But, looking back at the videos of her 2 years old, She talks mostly “a-(あー）" and “u-(うー)".
Can’t have a meaningful conversation with her…
I wish I could walk with her hand in hand, like every other mom…
(I was always chasing her from BEHIND.)
Sometimes I envied other mothers😭
But suddenly, I rearized something with looking that she was singing cheerfully.
“She has a trouble communicating with me verbally and is slow in development, but she always seems to have fun and laughs at me…"
“Hmm🤔? She’s always make other people smile…Isn’t that a very good thing?"
“Following her behavior, I’ll also do something good for other people!"
That’s why I’ve launched a Japanese version of this blog first ( It’s 凸凹家族のひとりごと。) in 2019.
I also set up an English version of the blog today, in the hope that it will be some help for people from overseas who are looking for Ryoiku in Japan.
For me, it was Unknown World.
So far, the most troubling thing I’ve had about my daughter was “How can I get to Ryoiku?"
City preschools…? public and private Ryoiku…? applications that are better done at city hall…?
Enen if I did some research on my own, ｗhen it comes to touring Ryoiku and submitting applications, there were a lot of things I didn’t know.
And I didn’t know how to decide!
For me, It was just an “Unknown World"😅😂
I’m going to write about how I’ve been thinking and how she has grown up, as if telling to myself at past time.
It’s like saying to my self, “Maybe that will go like this, if you choose this way!"😂
I want to write this blog so that the readers can feel symphathy and positive emotions even just a little bit! 🙏🏻✨
Thank you for your reading☆